Our Data Sources

FollowGene pulls data automatically from the international scientific databases and APIs listed below. Every information card carries a reliability badge showing where its data came from.

Primary sources (Verified — Level 1)

ClinicalTrials.gov

The clinical trial registry maintained by the US National Institutes of Health (NIH), covering studies worldwide. It holds more than 500,000 trial records.

  • API: ClinicalTrials.gov v2 REST API
  • Update frequency: every 6 hours
  • Fields we ingest: NCT ID, title, phase, status, sponsor, locations, eligibility criteria

PubMed / NCBI E-utilities

The National Library of Medicine's biomedical literature database, with more than 36 million peer-reviewed publication records.

  • API: NCBI E-utilities (esearch, esummary)
  • Update frequency: daily
  • Fields we ingest: PMID, title, abstract, authors, journal, publication date

FDA OpenFDA

The open data platform of the US Food and Drug Administration, covering drug approvals, safety reports and orphan drug designations.

Official sources (Level 2)

ClinVar

An NCBI database reporting the clinical significance of genetic variants, including variant–disease relationships and pathogenicity assessments.

Ensembl

The genome browser maintained by the European Bioinformatics Institute (EBI) and the Wellcome Sanger Institute. It provides gene location, transcript and protein information.

OMIM (Online Mendelian Inheritance in Man)

A comprehensive catalogue of human genes and genetic disorders maintained by Johns Hopkins University, with more than 7,400 disease entries.

Orphanet

The European Union–funded rare disease database. It provides prevalence, inheritance pattern and expert centre information for more than 6,000 rare diseases.

Update schedule

  • Every 6 hours: ClinicalTrials.gov clinical trials
  • Daily: PubMed publications, ClinVar variants, Orphanet
  • Hourly: FDA OpenFDA approvals, API health checks
  • Weekly: Ensembl gene records