Tweens to Teens Project at Penn State

Plain-language summary

This study looks at girls with congenital adrenal hyperplasia due to 21-hydroxylase deficiency, and their families, through questionnaires and interviews. It included girls aged 10-13 at the start along with their parents and caregivers. It was carried out as a study with no assigned phase and has been completed.

The summary above is a plain-language rendering of the official record. The original English title is shown for reference.

Trial details

Phase

N/A

Status

Completed

Sponsor

Penn State University

Intervention

Questionnaires/Interviews, Questionnaires/Interviews

Start date

8/1/2009

Estimated completion

7/1/2013

Countries

United States

Related genes

Locations

• University Park, United States

Eligibility criteria

Criteria are reproduced from the ClinicalTrials.gov record in the original English. Only the trial team can determine eligibility.

Inclusion Criteria:

* Girls with classical or non-classical CAH due to 21-OHD
* Girls will be aged 10-13 years at initial recruitment
* Parents will include biological mothers and fathers as well as step-parents and/or other guardians/significant caregivers
* Parents/guardians may range in age from 18 years of age to 65 years of age.

Exclusion Criteria:

* Girls who are not within the age range of 10-13 years old at initial recruitment
* CAH not due to the 21-OHD form