Parenting and CAH - 21-hydroxylase Deficiency

Plain-language summary

This study uses a phone questionnaire to explore parenting among patients with congenital adrenal hyperplasia caused by 21-hydroxylase deficiency. Adults aged 18 and older with a genetically confirmed diagnosis may take part. Conducted by Assistance Publique - Hôpitaux de Paris, this study without an assigned phase is currently recruiting participants.

The summary above is a plain-language rendering of the official record. The original English title is shown for reference.

Trial details

Phase

N/A

Status

Recruiting

Sponsor

Assistance Publique - Hôpitaux de Paris

Intervention

phone questionnaire

Start date

3/16/2026

Estimated completion

3/16/2027

Countries

France

Related genes

Locations

• Bron, France
• Le Kremlin-Bicêtre, France
• Paris, France
• Paris, France

Eligibility criteria

Criteria are reproduced from the ClinicalTrials.gov record in the original English. Only the trial team can determine eligibility.

Inclusion Criteria:

* Patients aged 18 or over
* Patients with HCS due to 21-hydroxylase deficiency, confirmed genetically
* Patients who have been informed and do not object to participating in the research

Exclusion Criteria:

* Patients who do not speak French
* Patients who are not affiliated to a social security scheme or who are not entitled to it
* Patients under legal protection, or under guardianship or trusteeship.