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This study develops a biobank model for collecting samples and data on rare diseases using sustainable and shared criteria. It enrolls patients with a rare disease and their family members. It is a non-phase study and is currently recruiting participants.
The summary above is a plain-language rendering of the official record. The original English title is shown for reference.
Criteria are reproduced from the ClinicalTrials.gov record in the original English. Only the trial team can determine eligibility.
Inclusion Criteria: patients with a rare disease or family members - Exclusion Criteria: none \-