Inherited Retinal Degenerative Disease Registry

Plain-language summary

This is an observational study that follows people diagnosed with an inherited retinal degenerative disease through a registry. It includes people with a diagnosis of heritable retinal degeneration; those with glaucoma only, diabetic retinopathy only, or non-heritable retinal disease are excluded. It is being conducted as a non-phase observational study and is still recruiting participants.

The summary above is a plain-language rendering of the official record. The original English title is shown for reference.

Trial details

Phase

N/A

Status

Recruiting

Sponsor

Foundation Fighting Blindness

Start date

6/1/2014

Estimated completion

6/1/2037

Countries

United States

Related genes

Locations

• Columbia, United States

Eligibility criteria

Criteria are reproduced from the ClinicalTrials.gov record in the original English. Only the trial team can determine eligibility.

Inclusion Criteria:

* Diagnosed with an inherited retinal degenerative disease OR

Exclusion Criteria:

* Glaucoma only
* Diabetic retinopathy only
* Non-retinal disease
* Not heritable retinal disease