Your trusted guide in the gene therapy revolution.
FollowGene is an independent information tracking platform that brings together clinical trials, drug approvals, and scientific publications in the field of rare genetic diseases and gene therapy.
We monitor 285 genes, 372 diseases, and thousands of clinical trials in real time — ensuring patients, families, and researchers get the right information as fast as possible.
Our data is sourced directly from international authorities including ClinicalTrials.gov, PubMed, ClinVar, Ensembl, OMIM, Orphanet, and FDA OpenFDA, and is updated regularly.
The gene therapy field is growing with new discoveries every day. However, this information is typically scattered across academic journals, English-language databases, and institutional reports. FollowGene aims to eliminate this information asymmetry by presenting this fragmented data in a structured, accessible, and reliable format.
People living with a rare genetic condition and their loved ones. They can track ongoing clinical trials, new treatment options, and FDA/EMA approvals related to their diagnosis.
Scientists working on gene therapy, CRISPR, and rare diseases. They get rapid access to current publications, variant data, and trial information.
Physicians dealing with genetic diseases. They can evaluate suitable clinical trials and treatment options for their patients.
Every information card on the platform carries a badge indicating its source reliability level. This system allows users to see at a glance how trustworthy the data is.
FollowGene does not provide medical advice. All information on the platform is for informational purposes only and does not replace professional medical consultation. Please consult a healthcare professional for your health decisions.
For questions, suggestions, or collaboration requests:
info@followgene.com